Saheli Datta Burton

This book sets out a critical sociological approach to ‘personalised medicine’ (PM), highlighting its limitations and flaws, but also emphasising its hopeful potentialities for a better medicine in the future. Bringing together perspectives from science and technology studies, medical sociology, law and bioethics, the book traces personalised medicine from its historical roots in disease classification and genomics to its data-driven present of digital infrastructures, algorithmic prediction, and precision therapeutics. Across seven chapters, it explores how measurement, classification, and datafication shape medical knowledge; how infrastructures and platforms distribute benefits and risks; how publics are imagined as patients, consumers, and citizens; and how privacy, access, and equity are negotiated in global health systems. The book concludes by outlining possible futures grounded in solidarity, patient-centered care, and democratic innovation—offering practical ways to shift personalised medicine from a privilege for the few to a shared public good. Written for scholars and practitioners in science and technology studies, sociology of medicine, health policy, and bioethics, as well as for clinicians and policymakers, this book will engage readers seeking to understand—and reshape—the social futures of data-intensive healthcare. It will also be useful for policy makers debating the implementation of different personalised medicine projects in local or national healthcare systems.

This book sets out a critical sociological approach to ‘personalised medicine’ (PM), highlighting its limitations and flaws, but also emphasising its hopeful potentialities for a better medicine in the future. Bringing together perspectives from science and technology studies, medical sociology, law and bioethics, the book traces personalised medicine from its historical roots in disease classification and genomics to its data-driven present of digital infrastructures, algorithmic prediction, and precision therapeutics. Across seven chapters, it explores how measurement, classification, and datafication shape medical knowledge; how infrastructures and platforms distribute benefits and risks; how publics are imagined as patients, consumers, and citizens; and how privacy, access, and equity are negotiated in global health systems. The book concludes by outlining possible futures grounded in solidarity, patient-centered care, and democratic innovation—offering practical ways to shift personalised medicine from a privilege for the few to a shared public good. Written for scholars and practitioners in science and technology studies, sociology of medicine, health policy, and bioethics, as well as for clinicians and policymakers, this book will engage readers seeking to understand—and reshape—the social futures of data-intensive healthcare. It will also be useful for policy makers debating the implementation of different personalised medicine projects in local or national healthcare systems.

This book provides a powerful diagnosis of why the global governance of science struggles in the face of emerging powers. Through unpacking critical events in China and India over the past twenty years, it demonstrates that the 'subversiveness' assumed in the two countries' rise in the life sciences reflects many of the regulatory challenges that are shared worldwide. It points to a decolonial imperative for science governance to be responsive and effective in a cosmopolitan world. By highlighting epistemic injustice within contemporary science, the book extends theories of decolonisation.

This book provides a powerful diagnosis of why the global governance of science struggles in the face of emerging powers. Through unpacking critical events in China and India over the past twenty years, it demonstrates that the 'subversiveness' assumed in the two countries' rise in the life sciences reflects many of the regulatory challenges that are shared worldwide. It points to a decolonial imperative for science governance to be responsive and effective in a cosmopolitan world. By highlighting epistemic injustice within contemporary science, the book extends theories of decolonisation.